Lincolnshire IA is affiliated to IA – The Ileostomy and Internal Pouch Association. Lincolnshire IA was formerly known as the Lincoln Division of the Ileostomy Association of Great Britain & Ireland. One of approximately 50 local groups/branches throughout the UK & Ireland.
Who are IA?
The Ileostomy and Internal Pouch Association (formerly known as the Ileostomy Association of Great Britain and Ireland), is a mutual support group which has the primary aim of helping people who have had or are about to have their colon removed.
It was started in 1956 by a group of people who had ileostomies themselves, together with some members of the medical profession. It was the first ostomy association in the United Kingdom and it is a registered national charity (No. 1172338).
What is an Ileostomy/Internal Pouch?
Certain inflammatory bowel diseases, e.g. ulcerative colitis and Crohn’s disease, sometimes cause such considerable damage to a person’s large intestine (colon) that it becomes necessary for a surgeon to remove it entirely. With a Brooke ileostomy, the lower end of the small intestine (ileum) is brought out through the abdominal wall, and the body’s waste matter is collected in an externally attached bag.
Alternatively, a patient who has ulcerative colitis may be able to choose to have an internal pouch, which involves the construction of a reservoir from a section of the ileum, after removal of the affected colon. Someone who has a pouch does not need to wear an external ileostomy appliance (bag). People who have Crohn’s disease cannot usually have an internal pouch.
It is estimated that there are more than 13,500 people a year in Great Britain and Ireland who have colon surgery. This means that you might well have already met someone who has an ileostomy or internal pouch, and know that they are able to lead perfectly normal lives.
What are IA’s Aims?
- to help anyone who has had, or is about to have, their colon removed to return to a fully active and normal life as soon as possible
- to help them with all aspects of their rehabilitation including social activities, and relationships with their families, friends, employers, colleagues and members of the general public
- to work in close co-operation with the medical authorities as part of a team whose primary aim is the complete rehabilitation of every ileostomy or pouch patient
- to promote and co-ordinate research – not only into ways of improving the quality of life with an ileostomy or pouch, but also into the illnesses which lead to these operations
- to improve knowledge about the management of ileostomies or pouches and encourage development of new ostomy equipment and skin-care preparation
Lincolnshire IA supports all the above and holds 2 meetings per year, the Agm in April/May (This will change from 2021) and the Autumn meeting (in 2020 this will change to the AGM) in November. We hold monthly social events. We raise funds to aid the day to day expenses of Lincolnshire IA and to donate to research programs and other related and worthwhile causes. All donations are voted on by the committee. In 2020 the committee will hold a committee meeting in July and December. It will also hold Trustee meetings in March and October. It also holds a three course meal of your choice plus either tea or coffee usually on the first Sunday of the month at lunchtime, which is open to its members only with one guest at a cost of £12-50 per person for the April and September meals and £15-00 for the Christmas meal.
If anyone wishes to attend said meetings please contact the Hon. Secretary Paul Pyrah for times, dates and venues which are subject to change.
If you have any ideas which could help Lincolnshire IA and its members please contact the Hon. Secretary.